Part of Dr. Kelly’s vision for his UCLA Pituitary Tumor and Neuroendocrine Program was to sponsor an educational pituitary patient support group. Ironically, in April of 2000 at my follow-up appointment with Dr. Kelly after he successfully removed my pituitary tumor, I asked “Can we start a pituitary patient support group?” And he said “Yes.”
One year later, with the help of Dr. Kelly, Dr. Cohan, Dr. Kelly’s Nurse Practitioner Dioni Krystina (a prolactinoma patient of Dr. Kelly’s), and myself we founded our support group. Our first meeting was held in April 2001, and Dr. Cohan was our guest speaker. We mailed out 200 announcements to most of Dr. Kelly’s patients and we had approximately 19 attendees. We were thrilled!
I am proud to say our group has grown to the largest pituitary patient support group nationally and to the best of my knowledge internationally as well. We now send out over 600 announcements and always have a full house.
Dr. Kelly, Krystina and I are very excited for all the great new opportunities the Brain Tumor Center (BTC) will bring for our patient support group!
And we look forward to seeing you there!